504 Plans and School Accommodations: How to Start the Conversation
What a 504 plan is, why it can matter even when you feel well, examples of accommodations, and how to start the conversation. Includes a printable preparation worksheet.
Resource Hub
Articles for teens navigating ADPKD.
Five articles written for adolescents with autosomal dominant polycystic kidney disease (ADPKD) or a family history of it. Each one gives background and vocabulary, then helps you start a conversation with the people who can help. They are educational, not medical or legal advice.
Every article ends with the questions worth asking, when to bring in your care team, and what the situation can feel like. Read them in any order.
Sports and Physical Activity: How to Start the Conversation
Why activity is part of ADPKD care, why contact sports get their own conversation, and what your nephrologist may consider when a specific sport comes up.
Telling People About ADPKD: Deciding Whether, When, and Who
Deciding whether, when, and who to tell. Who may need to know something, who you might want to tell, and how much to say.
Moving to Adult Kidney Care: Taking Over One Piece at a Time
What transition means, what changes and what does not, the skills you can build one at a time, and how to start talking about it.
Applying to College with ADPKD: Keeping Four Decisions Separate
How college handles health and disability differently from high school, and why “should I tell them?” is really four separate decisions.
Looking for the School Toolkit?
The PKD Bridge School Outreach Toolkit lets a student lead a short awareness session at their own school. It includes a slide deck, speaker talking points, a teacher one-pager, and an FAQ.