Resource Hub
Five adolescent-facing articles on school accommodations, sports participation, disclosure, transition to adult care, and college planning.
Read the articles →
New section: how to follow ADPKD research
A bridge for teens navigating ADPKD.
PKD Bridge™ is a teen-designed, clinician-advised educational initiative for adolescents with autosomal dominant polycystic kidney disease (ADPKD) or familial ADPKD risk.
Start with the Resource Hub if ADPKD is your own condition or runs in your family, the School Toolkit if you want to explain it at school, or Following the Research if you want to know what the studies actually say.
All materials are educational information, not medical or legal advice.
What is here
PKD Bridge has four parts: articles for teens, a toolkit for students who want to explain ADPKD at school, a guide to following ADPKD research, and, when it opens, essays by teens.
School Toolkit
A self-contained toolkit to help students raise awareness and start informed conversations in school settings: slides, talking points, a teacher one-pager, and an FAQ.
Open the toolkit →Following the Research
Where to look for ADPKD research, how to tell whether a study was done in people or in animals, what trial phases mean, and what to do with what you find.
Read the guide →Teen Voices
A planned collection of first-person essays by adolescents with ADPKD, developed with consent and editorial safeguards.
Coming laterWho this site is for
Teens with ADPKD, or with ADPKD in the family: start with the Resource Hub.
Want to explain ADPKD at your school? The School Toolkit is for you.
Parents and school staff: PKD Bridge materials are written for teens. Reading them can help you understand what your teen is reading. The PKD Foundation maintains resources for parents.
PKD Bridge is not affiliated with, sponsored by, or endorsed by the PKD Foundation.
Clinicians and researchers: PKD Bridge is an independent educational pilot described in a protocol manuscript in development. Questions about the project can be sent to contact@pkdbridge.org.
What is ADPKD?
Autosomal dominant polycystic kidney disease (ADPKD) is an inherited condition in which fluid-filled cysts form in the kidneys and can enlarge them over time. Many teenagers with ADPKD feel well and have no symptoms. The articles on this site explain what the condition can mean for school, sports, privacy, and moving into adult care.
Contact
For general inquiries, please email contact@pkdbridge.org. Please do not include private medical details in your message. PKD Bridge cannot provide medical advice.