Resource Hub
Planned adolescent-facing articles on school accommodations, sports participation, disclosure, transition to adult care, and college planning.
Under development
A bridge for teens navigating ADPKD.
PKD Bridge™ is a teen-designed, clinically guided educational initiative for adolescents with autosomal dominant polycystic kidney disease (ADPKD) or familial ADPKD risk.
Educational resources are currently being prepared and will be published after appropriate clinical review.
Planned components
PKD Bridge is being developed as a supportive, content-driven initiative with educational, school-facing, and narrative components.
School Toolkit
A planned self-contained toolkit to help students raise awareness and start informed conversations in school settings.
Teen Voices
A planned collection of first-person essays by adolescents with ADPKD, developed with consent and editorial safeguards.
About the initiative
PKD Bridge is being developed to address the gap between parent-facing pediatric PKD resources and adult or young-adult PKD communities. The project focuses on practical, age-relevant issues that may arise during adolescence, including school participation, privacy, sports, self-advocacy, and preparation for greater responsibility in care.
Current status
- Protocol manuscript in development for submission as a research protocol.
- Educational resource topics and school-toolkit structure identified.
- Clinical review process planned before publication of health-related content.
- Future collaboration and dissemination partnerships may be pursued.
Contact
For general inquiries, please email contact@pkdbridge.org. Please do not include private medical details in your message. PKD Bridge cannot provide medical advice.
Important note
PKD Bridge provides educational information only. It does not provide medical advice, diagnosis, treatment recommendations, legal advice, school-advocacy representation, mental-health counseling, or crisis support. Individual medical questions should be discussed with a qualified clinician.
If you need support right now, you can call or text 988 (the Suicide and Crisis Lifeline) or text HOME to 741741 (the Crisis Text Line). In an emergency, call 911.